Since site content and usernames are google searchable, you may protect your anonymity by creating a unique username.
To change your username, click here.
All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment.
Always seek the advice of your physician or qualified health provider with any questions regarding your health.
Do not disregard professional medical advice or delay seeking it because of something you read on this site.
Thanks for your cooperation.
Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin, the protective covering of nerve fibers. Acute disseminated encephalomyelitis usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis.
Hi All, I am new to the group, so firstly thanks Ken E and FCMMARK for your welcome and encouraging words.My husband has had ADEM since June 2014, he is 43 years old. Previously was a healthy chap with only 2 days sickness at work for the past 23…Continue
My 1 year old daughter was diagnosed with ADEM and also TM since it did not affect her brain too much. Demyelination of her spinal cord was from the cerebrospinal junction to T10. The onset of paralysis began 05/26/15 with IVIG and high dose steroid…Continue
We are now back home after 10 days away from home, the MRI was on JULY 6 at phoenix, the appoinment with the doctor was the next day JULY 7, thanks GOD my Alex is doing so great, the doctor was amazed because he is 99% great, like he was before…Continue
Hello,I have a dear family member in their thirties who is presently in a coma with a diagnosis of ADEM. Obviously we are frightened and confused. It would mean so much to hear from people who have been in a similar position in the past. Thank you…Continue
We have had a couple of reports of pop-up ads on this community. I'm not seeing them myself. They are not part of Ben's Friends and may be related to malware. If you are seeing such ads, please leave a comment. Thanks!Continue
After my injury I couldn't read for a month. After they treated it, I could but it was difficult. It was difficult because it was hard to make out the shapes. It was also difficult because it sucked the mental energy out of me instantly. Also my…Continue
Our daughter was diagnosed in October 2014 with ADEM. She was having s hard time staying awake, losing the ability to walk and move her left side at all. We received treatments of steroids and two weeks later we had relapsed, this time her optic…Continue
I want to thank you for adding me. I am the mother of a 21 year old daughter who was diagnosed with ADEM 7/7/15. July 4 my daughter was transported to a small rural facility for severe dizziness, nausea, and vomiting. Upon arrival at the small…Continue
Keep in touch with friends. DOWNLOAD the Ben's Friends iPhone App now.
Posted by Sandra F on July 13, 2015
Posted by BelS on July 27, 2015
Posted by Crystal on July 8, 2015
Posted by Elaine - Haley'sMom on June 12, 2015
Posted by stardust on July 24, 2015
Posted by Occipital on July 5, 2015
Posted by JP on June 30, 2015
Posted by MissDP on June 26, 2015