Welcome

Welcome! You're not alone.

If your family has been affected by ADEM, consider Acute Disseminated Encephalomyelitis Support Network your second home.

NOW....GET STARTED:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time User Guide.

Concerned About Privacy

Since content and usernames are searchable on this site, you may protect your anonymity by creating a unique username.

To change username, click here. 

Need a Doctor or Specialist?

 

Blog Posts

Local Fundraiser for Ben's Friends

Posted by Scott Orn on March 22, 2015 at 2:30am 0 Comments

I wanted to share some good news from a local fundraiser we did last night in San Francisco. Some friends of mine wanted to support Ben's Friends so they held a "bar night get together for Ben's Friends."

It was a big success as we…

Continue

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
  2. No spam.
  3. No personal attacks or defamatory posts.
  4. No offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos).
  5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
  6. No sharing of members' posts to other sites without their express permission.
  7. No solicitations or promotions of goods or services. No fundraising without the permission of the moderators.
  8. No email addresses or phone numbers on the forum, please.
  9. We welcome people of any faith and no faith, but we ask that you not evangelize or attempt to impose your belief system on other members.
  10. Check your politics at the door, please.

Thanks for your cooperation.

Disclaimer

All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

Birthdays

There are no birthdays today

Community Moderators

Have a question, concern, or suggestion? Or would you like to volunteer?

Please send a private message to a moderator.

Ken
LauraK

Groups

ClinicalTrials.gov Studies

Gift Store

 

What is Acute Disseminated Encephalomyelitis?

Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin – the protective covering of nerve fibers.  It often follows viral infection, or less often, vaccination for measles, mumps, or rubella. Acute disseminated encephalomyelitis also usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis

Mobile App and E-book are Available for Download

Keep in touch with friends. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

Queenie replied to Worriedmom's discussion Foot giving out
"I second chiropractor although not for manipulations but for kinesiology. My girl had 4 or 5…"
yesterday

GREETER
Lynn replied to Worriedmom's discussion Foot giving out
"Have you ever tried Chiropractic?  His head pain may benefit from cervical treatment.  As…"
yesterday
Lily's Mom posted a discussion

Anyone else considering diet and lifestyle changes?

I want to share some books I've read and would recommend.Dr. Sarah Ballantyne's book The Paleo…See More
yesterday
Lily's Mom replied to Worriedmom's discussion Foot giving out
"Are you able to see a physical therapist? Talk to them about the foot drop. The head pressure does…"
yesterday
Lily's Mom commented on pam's blog post toilet habits
"For the first few months our daughter, 6yo, had the same frequent urge. We encouraged her to…"
yesterday
Worriedmom posted a discussion

Foot giving out

Good morning everyone!My 7 year old son was diagnosed with ADEM in Oct 2013. He is doing very well,…See More
Tuesday
Mama Bear replied to Mama Bear's discussion does anyone else have eye rolls?
"Thanks for the responses! So- Wesley was put on Steroids- Prednisolone for 5 days to help with what…"
Monday
Mime replied to Mama Bear's discussion does anyone else have eye rolls?
"Hi mama, I'm not a native English speaker so please excuse me if I don't…"
Monday

Top Content 

1 Vaccinations after ADEM

Vaccinations after ADEM

Posted by Queenie on March 18, 2015

2 When is it appropriate to wait, and when should we take action?

When is it appropriate to wait, and when should we take action?

Posted by Angie's Sister on March 15, 2015

3 toilet habits

toilet habits

Added by pam on March 19, 2015

4 My first Discussion and I Think You've Helped Me Already :)

My first Discussion and I Think You've Helped Me Already :)

Posted by Lily's Mom on March 4, 2015

5 does anyone else have eye rolls?

does anyone else have eye rolls?

Posted by Mama Bear on March 18, 2015

 
 
 

Help Us Help Others

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Bens Friends

To Support AcuteDisseminatedEncephalomyelitis.org, Click an Ad. Or Two.

Are you in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

Photos

Loading…

ADEM is a peer-to-peer network

To get support, give support.

Events

Partners

BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.

© 2015   Created by Bensfriends.org

Badges  |  Report an Issue  |  Terms of Service