Welcome! You're not alone.

If your family has been affected by ADEM, consider Acute Disseminated Encephalomyelitis Support Network your second home.


1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Need a Doctor or Specialist?


Blog Posts

Ben's Friends Monthly Newsletter - August 2014 Issue

Posted by Ben Munoz on August 26, 2014 at 7:30am 0 Comments

Just the Stats:

Communities: 35

Friends: 42,000+

In this issue…


Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter in the Chat Room.   
5. No specific doctor or hospital names mentioned in a negative context, for legal reasons.    
Specific doctor or hospital names in a positive context are welcome.
6. No sharing of members' posts to other sites without their express permission.
7. There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted.
Thanks for your cooperation.


All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.


Birthdays Tomorrow

Community Moderators




  • Add Videos
  • View All

ClinicalTrials.gov Studies

Gift Store


What is Acute Disseminated Encephalomyelitis?

Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin – the protective covering of nerve fibers.  It often follows viral infection, or less often, vaccination for measles, mumps, or rubella. Acute disseminated encephalomyelitis also usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis


memory issues

Started by LauraK in General. Last reply by LauraK 8 hours ago. 4 Replies

Bad Days

Started by Flu shot ADEM in General. Last reply by Johnsmom 21 hours ago. 9 Replies

Recurrent ADEM?

Started by sweetie pie in General. Last reply by sweetie pie yesterday. 5 Replies

Mobile App and E-book are Available for Download

Keep in touch with friends. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

JHESS replied to JHESS's discussion Treatment for ADEM with cyclophosphamide or rituximab
"Thanks for the reply. In 2010 he started off with stroke like symptoms, his face had dropped and…"
26 minutes ago

LauraK replied to LauraK's discussion memory issues
"Thanks for the suggestions. My counselor wants me to sit still and breathe. I don't do that…"
8 hours ago

LauraK replied to LauraK's discussion memory issues
"I am under the care of a homeopath. The remedy I'm taking doesn't improve my memory but…"
8 hours ago
Worriedmom replied to LauraK's discussion memory issues
"It's incredible to receive this post this morning, since my husband and I just yesterday…"
9 hours ago
Lianne replied to LauraK's discussion memory issues
"My eyes read, my brain doesnt. At first I was so glad I could at least see again. But my eyes and…"
18 hours ago

LauraK's discussion was featured

memory issues

I know that for many of us symptoms vary day to day as does the degree to which each symptom…See More
19 hours ago
Johnsmom replied to Flu shot ADEM's discussion Bad Days
"Hi!  I'm sorry for what you're going through.  I am trying to find out if or…"
21 hours ago

LauraK posted a discussion

memory issues

I know that for many of us symptoms vary day to day as does the degree to which each symptom…See More

Top Content 

1 Vision problems after ADEM

Vision problems after ADEM

Posted by Lien on August 21, 2014

2 Bad Days

Bad Days

Posted by Flu shot ADEM on August 6, 2014

3 Help


Posted by Danny on August 12, 2014

4 Recurrent ADEM?

Recurrent ADEM?

Posted by sweetie pie on August 4, 2014



Posted by Danny on August 13, 2014


Help Us Help Others

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Bens Friends

To Support AcuteDisseminatedEncephalomyelitis.org, Click an Ad. Or Two.

Are you in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.


  • Add Photos
  • View All




BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.

© 2014   Created by Bensfriends.org

Badges  |  Report an Issue  |  Terms of Service