Welcome

Welcome! You're not alone.

Getting Started:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group

QUESTIONS? 
Check our FAQ PAGE and First-Time User Guide.

Privacy

Since site content and usernames are google searchable, you may protect your anonymity by creating a unique username.

To change your username, click here. 

Disclaimer

All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment.

Always seek the advice of your physician or qualified health provider with any questions regarding your health.

Do not disregard professional medical advice or delay seeking it because of something you read on this site.

Our Guidelines

Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
  2. No spam.
  3. No personal attacks or defamatory posts.
  4. No offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos).
  5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
  6. No sharing of members' posts to other sites without their express permission.
  7. No solicitations or promotions of goods or services for sale. No fundraising without the permission of the moderators.
  8. No email addresses or phone numbers on the forum, for your security.
  9. Religious content must be restricted to the prayer group.
  10. No politics please, please.

Thanks for your cooperation.

Community Moderators

Have a question, concern, or suggestion? Or would you like to volunteer?

Please send a private message to a moderator.

Ken
LauraK

Doctors List

 

Birthdays

Birthdays Today

Birthdays Tomorrow

ClinicalTrials.gov Studies

Loading… Loading feed

Gift Store

 

What is Acute Disseminated Encephalomyelitis?

Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin, the protective covering of nerve fibers. Acute disseminated encephalomyelitis usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis.

Mobile App and E-book are Available for Download

Keep in touch with friends. DOWNLOAD the Ben's Friends iPhone App now.

Be inspired by the amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

juliana left a comment for Ken E.
"hello thank you for the warm reception in this community button.You will tell the story of my…"
yesterday
Queenie updated their profile
yesterday

Moderator
Ken E. replied to granel's discussion Coping with ADEM after being discharged from the hospital
"Granel, good for you - sometimes you need to really push these doctors to take action.  Are…"
yesterday
granel replied to granel's discussion Coping with ADEM after being discharged from the hospital
"Hello Ken E. Thank you so much! I am so glad that I found this forum, hearing every ones stories…"
yesterday

Moderator
Ken E. replied to granel's discussion Coping with ADEM after being discharged from the hospital
"Hi granel.  I would definitely ask your doctor about the decision not to give steroids.…"
Wednesday

Moderator
Ken E. left a comment for juliana
"Hi Juliana.  Welcome to our community.  I'm sorry to hear about your sister.…"
Wednesday
juliana left a comment for Madere (dancermom)
"thank you for welcoming me I wish all the best to everyone with this diagnose"
Wednesday
Sonie replied to granel's discussion Coping with ADEM after being discharged from the hospital
"I am so Sorry to read what your son has gone through. I recently watched Acute Disseminated…"
Wednesday

Top Content 

1 adem

adem

Posted by scott on May 12, 2015

2 Sense of smell and taste

Sense of smell and taste

Posted by Kerry Amanda on May 20, 2015

3 Coping with ADEM after being discharged from the hospital

Coping with ADEM after being discharged from the hospital

Posted by granel on May 26, 2015

4 Symptoms during taper / taper schedule

Symptoms during taper / taper schedule

Posted by Simba Hastings on May 11, 2015

5 CEREBROLYSIN

CEREBROLYSIN

Posted by ENAS on May 16, 2015

6 ADEM treatment

ADEM treatment

Posted by Milkias on May 15, 2015

7 Recovery timetable

Recovery timetable

Posted by sisto on April 29, 2015

 
 
 

Help Us Help Others

Follow Us

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Support Ben's Friends

Bens Friends

To Support AcuteDisseminatedEncephalomyelitis.org, Click an Ad. Or Two.

Are you in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for the right phone number in your region.

NEWSLETTER

ADEM is a peer-to-peer network

To get support, give support.

Blog Posts

Please help regarding seizure med.

Posted by JP on April 14, 2015 at 3:37am 1 Comment

Hi, please give me advice and/or opinions on seizure meds?  My son is 3, almost 4.  He was diagnosed w/ ADEM in Aug. 2014 and didn't start having seizures till 3 months post diagnosis.  He's improved greatly since he was released from the…

Continue

Events

Partners

BensFriends.org is proud to partner with a number of organizations to better support our members.


To learn more about our partners, please visit this link.

About

© 2015   Created by Bensfriends.org

Badges  |  Report an Issue  |  Terms of Service