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Groups

 

What is Acute Disseminated Encephalomyelitis?

Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin, the protective covering of nerve fibers. Acute disseminated encephalomyelitis usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis.

Forum

Dizziness and slurring in re-ocuring ADEM

Started by BelS in General. Last reply by BelS 4 hours ago. 15 Replies

Hi All, I am new to the group, so firstly thanks Ken E and FCMMARK for your welcome and encouraging words.My husband has had ADEM since June 2014, he is 43 years old.  Previously was a healthy chap with only 2 days sickness at work for the past 23…Continue

Hyperbaric O2 Chamber and Acupuncture for ADEM / TM

Started by MissDP in Complementary Therapies. Last reply by JP 5 hours ago. 14 Replies

My 1 year old daughter was diagnosed with ADEM and also TM since it did not affect her brain too much. Demyelination of her spinal cord was from the cerebrospinal junction to T10. The onset of paralysis began 05/26/15 with IVIG and high dose steroid…Continue

Alex Update

Started by Sandra F in General. Last reply by Sandra F on Monday. 6 Replies

We are now back home after 10 days away from home, the MRI was on JULY 6 at phoenix, the appoinment with the doctor was the next day JULY 7, thanks GOD my Alex is doing so great, the doctor was amazed because he is 99% great, like he was before…Continue

Please talk to me about recovery from a coma

Started by stardust in General. Last reply by oconnor214 on Friday. 3 Replies

Hello,I have a dear family member in their thirties who is presently in a coma with a diagnosis of ADEM. Obviously we are frightened and confused. It would mean so much to hear from people who have been in a similar position in the past. Thank you…Continue

Tags: coma

Anyone seeing Pop-ups?

Started by Madere (dancermom) in General. Last reply by Madere (dancermom) Jul 18. 18 Replies

We have had a couple of reports of pop-up ads on this community. I'm not seeing them myself. They are not part of Ben's Friends and may be related to malware. If you are seeing such ads, please leave a comment. Thanks!Continue

What are your favorite text-to-speech voices?

Started by Occipital in General. Last reply by Occipital Jul 17. 2 Replies

After my injury I couldn't read for a month. After they treated it, I could but it was difficult. It was difficult because it was hard to make out the shapes. It was also difficult because it sucked the mental energy out of me instantly. Also my…Continue

ADEM long term effects ?

Started by Elaine - Haley'sMom in General. Last reply by Kckteach Jul 16. 10 Replies

Our daughter was diagnosed in October 2014 with ADEM. She was having s hard time staying awake, losing the ability to walk and move her left side at all. We received treatments of steroids and two weeks later we had relapsed, this time her optic…Continue

New to group.

Started by Crystal in General. Last reply by Occipital Jul 15. 6 Replies

I want to thank you for adding me. I am the mother of a 21 year old daughter who was diagnosed with ADEM 7/7/15. July 4 my daughter was transported to a small rural facility for severe dizziness, nausea, and vomiting. Upon arrival at the small…Continue

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Latest Activity

BelS replied to BelS's discussion Dizziness and slurring in re-ocuring ADEM
"Thanks for your honest feedback.  Brian is seeing the Neurologist today again, so lets…"
4 hours ago
JP replied to MissDP's discussion Hyperbaric O2 Chamber and Acupuncture for ADEM / TM
"Hi MissDP, I tried again to log onto the testimonials from the Arizona HBOT website, but was unable…"
5 hours ago
JP replied to MissDP's discussion Hyperbaric O2 Chamber and Acupuncture for ADEM / TM
"Hi, I did speak to my son's neurologist and he said he was on a John Hopkins committee that…"
6 hours ago
papageo replied to BelS's discussion Dizziness and slurring in re-ocuring ADEM
"Your husband is lucky to have an understanding wife. In certain other cases patients who also…"
yesterday
BelS replied to BelS's discussion Dizziness and slurring in re-ocuring ADEM
"Wow "guys"!  Thanks so much for all this sharing.  I'm almost too scared…"
yesterday
Crystal replied to BelS's discussion Dizziness and slurring in re-ocuring ADEM
"My daughter was diagnosed July 5th of this year. One of her largest symptoms was the extreme…"
yesterday
papageo replied to BelS's discussion Dizziness and slurring in re-ocuring ADEM
"Ok, this is my story in short as the side effects sound very similar: December 2013 numb hands…"
yesterday
Occipital replied to BelS's discussion Dizziness and slurring in re-ocuring ADEM
"6 months. We heard that number, too. Nobody really knows. It is OK though. Recovery will continue…"
yesterday

Top Content 

1 Alex Update

Alex Update

Posted by Sandra F on July 13, 2015

2 Dizziness and slurring in re-ocuring ADEM

Dizziness and slurring in re-ocuring ADEM

Posted by BelS on July 27, 2015

3 New to group.

New to group.

Posted by Crystal on July 8, 2015

4 ADEM long term effects ?

ADEM long term effects ?

Posted by Elaine - Haley'sMom on June 12, 2015

5 Please talk to me about recovery from a coma

Please talk to me about recovery from a coma

Posted by stardust on July 24, 2015

6 What are your favorite text-to-speech voices?

What are your favorite text-to-speech voices?

Posted by Occipital on July 5, 2015

7 Behavioral issues

Behavioral issues

Posted by JP on June 30, 2015

8 Hyperbaric O2 Chamber and Acupuncture for ADEM / TM

Hyperbaric O2 Chamber and Acupuncture for ADEM / TM

Posted by MissDP on June 26, 2015

 
 
 

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