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Groups

 

What is Acute Disseminated Encephalomyelitis?

Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin, the protective covering of nerve fibers. Acute disseminated encephalomyelitis usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis.

Forum

I'm frustrated and confused

Started by Kris in General. Last reply by Sarah 53 minutes ago. 37 Replies

My husband is not doing great. He is now in the third hospital because insurance keeps mandating. My husband opens his eyes and sometimes is responsive. We were told by the care team day before yesterday that the neurologist at the current facility…Continue

About ADEM

Started by LauraK in General. Last reply by Stella yesterday. 10 Replies

Hey gang,So I went to the symposium this past weekend that dealt with Neuro Auto-Immune Disorders (ADEM and 3 others), and very little was discussed about adult on-set ADEM. I approached a number of the researchers, and they are under the impression…Continue

My first post, a bit about me, and a question :-)

Started by Andy730 in General. Last reply by Andy730 on Friday. 4 Replies

Hello to the group, I’ve only just found this place, and I’m looking for a bit of advice. But first, a bit about me..I took early retirement in 2009 at the age of 49. In 2012 I suffered my bout of ADEM. I had felt ill for a day or so, a bit like…Continue

Memory loss and bad hearing related to ADEM?

Started by Mark2x in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Lynn Feb 3. 3 Replies

Hi everyone, I was diagnosed with ADEM in the summer of 2013. It infected my small brains (instead of the big ones as usual), so I had troubles with walking, any movement-coördination, talking, seeing (blurry vague sight), ... and I had to throw up…Continue

Steroid Taper

Started by Blerta in General Jan 25. 0 Replies

Hello all!I had posted almost one month ago when our ADEM journey started and this group helped tremendously. At that time, I was confused, hopeless, and emotionally a mess. My husband had been transferred to ICU and was getting intubated. After…Continue

My wife Ingrid is aged 77 and suffered an ADEM attack at the end of 2014. She is now in rehab. I wish to discuss with other mature ADEM sufferers or carers the issues facing these patients and ways of

Started by dooglass in General. Last reply by Lynn Jan 24. 2 Replies

Ingrid's main problems are: imbalance, a  semi-drunken gait and a  "lead head" to use her description and; food allergies that have appeared six months or so after her recovery began. Formerly she was tolerant to  gluten and lactose. These now cause…Continue

Please help me- I need hope and ebcouragment

Started by Blerta in General. Last reply by momof4 Jan 20. 30 Replies

My husband has been diagnosed with ADEM and possible bacterial meningitis. Three weeks ago he had flu symptoms, chills, aches, fever. Went to urgent care, course of tamiflu and cipro (antibiotic). Last week he went to his primary care, as he still…Continue

ADEM Definition

Started by Lynn in General Jan 13. 0 Replies

I ran across this definition today, which I have not seen before and wanted to share it.  Reads fairly easily.  …Continue

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Latest Activity

Sarah replied to Kris's discussion I'm frustrated and confused
"As I see it if the new MRI shows no new lesions and the lesions have stopped growing then he will…"
53 minutes ago
Andy left a comment for Kris
"It's going well. This happened to me in 2013. I received the flu mist on base and I got sick.…"
21 hours ago
Andy and Kris are now friends
21 hours ago
Kris replied to Kris's discussion I'm frustrated and confused
"I did see Dr schriener at university hospital. She looked at the MRI from November and said that…"
21 hours ago
 
 
 

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