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Groups

 

What is Acute Disseminated Encephalomyelitis?

Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin, the protective covering of nerve fibers. Acute disseminated encephalomyelitis usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis.

Forum

My adult son diagnosed

Started by JR in General yesterday. 0 Replies

My 36 yr old son was diagnosed with ADEM on Monday. His history didn't include any vaccinations or illnesses. He claims to have no headache. He presented very confused about the time. He thinks the year is ten years ago. He has none of the symptoms…Continue

ADEM long term effects ?

Started by Elaine - Haley'sMom in General. Last reply by JP on Wednesday. 11 Replies

Our daughter was diagnosed in October 2014 with ADEM. She was having s hard time staying awake, losing the ability to walk and move her left side at all. We received treatments of steroids and two weeks later we had relapsed, this time her optic…Continue

Bickering, knit picking over small things, sometimes imaginary...

Started by Lotus in Emotional Support. Last reply by LauraK on Tuesday. 10 Replies

We are just Bickering seems like on a daily basis over tiny little things that don't mean anything, sometimes it will be over an imagined subject. And when I ask, can we please stop this bickering, and just have a nice weekend, or evening...then it…Continue

Hyperbaric O2 Chamber and Acupuncture for ADEM / TM

Started by MissDP in Complementary Therapies. Last reply by Madere (dancermom) on Sunday. 18 Replies

My 1 year old daughter was diagnosed with ADEM and also TM since it did not affect her brain too much. Demyelination of her spinal cord was from the cerebrospinal junction to T10. The onset of paralysis began 05/26/15 with IVIG and high dose steroid…Continue

Alex Update

Started by Sandra F in General. Last reply by Sandra F Aug 21. 9 Replies

We are now back home after 10 days away from home, the MRI was on JULY 6 at phoenix, the appoinment with the doctor was the next day JULY 7, thanks GOD my Alex is doing so great, the doctor was amazed because he is 99% great, like he was before…Continue

Pop ups

Started by Lotus in General. Last reply by Madere (dancermom) Aug 15. 1 Reply

Stopped seeing them then they decided to return!!Continue

Finding new doctors...

Started by LauraK in General. Last reply by LauraK Aug 14. 2 Replies

Hey gang,Sorry I've been off-line awhile. We moved to a new city-state, and are still trying to get settled in.Meanwhile, I'm having to find new doctors, and sadly this city also has no specialists in ADEM. I went to a neurologist who tried to tell…Continue

seizure

Started by Yoongil in General. Last reply by Yoongil Aug 12. 2 Replies

HiMy nephew is getting better since he was sick on Dec 2014. He had a one month in a induced coma and he had several times steroid, plasma exchange and IVIG. After then he was slowly getting better and now he can walk with help of walker and is on…Continue

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Latest Activity


Moderator
Modsupport left a comment for FCMMARK
"Seenie here. Glad to hear you are recovering well, Mark!  Somebody from modsupport will…"
yesterday
JR posted a discussion

My adult son diagnosed

My 36 yr old son was diagnosed with ADEM on Monday. His history didn't include any vaccinations or…See More
yesterday

Moderator
FCMMARK left a comment for Modsupport
"Hello Seenie.  Thanks for writing back and bringing light to this new Modsupport administrator…"
yesterday

Moderator
Modsupport left a comment for FCMMARK
"Hi, Seenie here. I'm a moderator on the BF PsA site, and I'm also helping with the larger…"
Wednesday
JP replied to Elaine - Haley'sMom's discussion ADEM long term effects ?
"Wow, interesting my son did similar treatments to your daughter.  Please message me.  thx…"
Wednesday

Moderator
LauraK replied to Lotus's discussion Bickering, knit picking over small things, sometimes imaginary...
"Hi Lotus, I'm sorry he thinks he is well. There are moments I feel I am too, then I'm…"
Tuesday
Lotus replied to Lotus's discussion Bickering, knit picking over small things, sometimes imaginary...
"I'm not sure we are going to survive the "New Normal" so to speak. He is…"
Tuesday

Moderator
Ken E. left a comment for JR
"Hi JR - Welcome to our community.  Please let us know how we can help and support your and…"
Tuesday

Top Content 

1 Alex Update

Alex Update

Posted by Sandra F on July 13, 2015

2 Hyperbaric O2 Chamber and Acupuncture for ADEM / TM

Hyperbaric O2 Chamber and Acupuncture for ADEM / TM

Posted by MissDP on June 26, 2015

3 Bickering, knit picking over small things, sometimes imaginary...

Bickering, knit picking over small things, sometimes imaginary...

Posted by Lotus on August 6, 2015

4 Pop ups

Pop ups

Posted by Lotus on August 12, 2015

5 seizure

seizure

Posted by Yoongil on August 3, 2015

6 Finding new doctors...

Finding new doctors...

Posted by LauraK on August 1, 2015

7 Dizziness and slurring in re-ocuring ADEM

Dizziness and slurring in re-ocuring ADEM

Posted by BelS on July 27, 2015

8 My adult son diagnosed

My adult son diagnosed

Posted by JR on August 26, 2015

 
 
 

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