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What is Acute Disseminated Encephalomyelitis?

Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin, the protective covering of nerve fibers. Acute disseminated encephalomyelitis usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis.

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Latest Activity

juliana left a comment for Ken E.
"hello thank you for the warm reception in this community button.You will tell the story of my…"
Queenie updated their profile

Ken E. replied to granel's discussion Coping with ADEM after being discharged from the hospital
"Granel, good for you - sometimes you need to really push these doctors to take action.  Are…"
granel replied to granel's discussion Coping with ADEM after being discharged from the hospital
"Hello Ken E. Thank you so much! I am so glad that I found this forum, hearing every ones stories…"

Ken E. replied to granel's discussion Coping with ADEM after being discharged from the hospital
"Hi granel.  I would definitely ask your doctor about the decision not to give steroids.…"

Ken E. left a comment for juliana
"Hi Juliana.  Welcome to our community.  I'm sorry to hear about your sister.…"
juliana left a comment for Madere (dancermom)
"thank you for welcoming me I wish all the best to everyone with this diagnose"
Sonie replied to granel's discussion Coping with ADEM after being discharged from the hospital
"I am so Sorry to read what your son has gone through. I recently watched Acute Disseminated…"

Top Content 

1 adem


Posted by scott on May 12, 2015

2 Sense of smell and taste

Sense of smell and taste

Posted by Kerry Amanda on May 20, 2015

3 Coping with ADEM after being discharged from the hospital

Coping with ADEM after being discharged from the hospital

Posted by granel on May 26, 2015

4 Symptoms during taper / taper schedule

Symptoms during taper / taper schedule

Posted by Simba Hastings on May 11, 2015



Posted by ENAS on May 16, 2015

6 ADEM treatment

ADEM treatment

Posted by Milkias on May 15, 2015

7 Recovery timetable

Recovery timetable

Posted by sisto on April 29, 2015


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Are you in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for the right phone number in your region.


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Blog Posts

Please help regarding seizure med.

Posted by JP on April 14, 2015 at 3:37am 1 Comment

Hi, please give me advice and/or opinions on seizure meds?  My son is 3, almost 4.  He was diagnosed w/ ADEM in Aug. 2014 and didn't start having seizures till 3 months post diagnosis.  He's improved greatly since he was released from the…




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