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Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin, the protective covering of nerve fibers. Acute disseminated encephalomyelitis usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis.
My husband is not doing great. He is now in the third hospital because insurance keeps mandating. My husband opens his eyes and sometimes is responsive. We were told by the care team day before yesterday that the neurologist at the current facility…Continue
Hey gang,So I went to the symposium this past weekend that dealt with Neuro Auto-Immune Disorders (ADEM and 3 others), and very little was discussed about adult on-set ADEM. I approached a number of the researchers, and they are under the impression…Continue
Hello to the group, I’ve only just found this place, and I’m looking for a bit of advice. But first, a bit about me..I took early retirement in 2009 at the age of 49. In 2012 I suffered my bout of ADEM. I had felt ill for a day or so, a bit like…Continue
Started by Mark2x in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Lynn Feb 3. 3 Replies 0 Likes
Hi everyone, I was diagnosed with ADEM in the summer of 2013. It infected my small brains (instead of the big ones as usual), so I had troubles with walking, any movement-coördination, talking, seeing (blurry vague sight), ... and I had to throw up…Continue
Hello all!I had posted almost one month ago when our ADEM journey started and this group helped tremendously. At that time, I was confused, hopeless, and emotionally a mess. My husband had been transferred to ICU and was getting intubated. After…Continue
Ingrid's main problems are: imbalance, a semi-drunken gait and a "lead head" to use her description and; food allergies that have appeared six months or so after her recovery began. Formerly she was tolerant to gluten and lactose. These now cause…Continue
My husband has been diagnosed with ADEM and possible bacterial meningitis. Three weeks ago he had flu symptoms, chills, aches, fever. Went to urgent care, course of tamiflu and cipro (antibiotic). Last week he went to his primary care, as he still…Continue
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Posted by Kris on January 21, 2016
Posted by Andy730 on February 4, 2016
My wife Ingrid is aged 77 and suffered an ADEM attack at the end of 2014. She is now in rehab. I wish to discuss with other mature ADEM sufferers or carers the issues facing these patients and ways of
Posted by dooglass on January 15, 2016
Posted by Mark2x on February 1, 2016