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If your family has been affected by ADEM, consider Acute Disseminated Encephalomyelitis Support Network your second home.

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Ben's Friends Monthly Newsletter - November 2014 Issue

Posted by Ben Munoz on November 26, 2014 at 7:30am 0 Comments

Just the Stats:

Communities: 38

Friends: 44,000+

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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Ben's Friends Fundraiser

Hi Past & Present Ben's Friends Supporters! 
We really need your help. Our annual Ben's Friends fundraiser is way below goal. So far we are at $14k with many generous donations. But at the very least we need to be at $25k, and ideally at $35k or above. 
We're probably the most efficient non profit in the world, helping 125,000 patients per month with a budget of $3k per month. But even we can't survive on $14k. 

Please donate at our super easy Donation Page at Ben's Friends . A $5 donation will make a big donation. Everything is tax deductible!

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We need your help to keep Ben's Friends alive and going strong!
We really need your help! Please donate, even if it's $5, that will really help.

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Scott
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What is Acute Disseminated Encephalomyelitis?

Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin – the protective covering of nerve fibers.  It often follows viral infection, or less often, vaccination for measles, mumps, or rubella. Acute disseminated encephalomyelitis also usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis

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Latest Activity

JP liked JP's discussion ADEM and seizures. What's the right medication?
yesterday
JD'sMom replied to JP's discussion ADEM and seizures. What's the right medication?
"I think IVIG (intravenous immunoglobulin) was key for my son. However, that alone wouldn't…"
yesterday
JP left a comment for JD'sMom
"Hi, please inbox me if you'd like.  Any info regarding optic neuritis would be greatly…"
yesterday
JP replied to JP's discussion ADEM and seizures. What's the right medication?
"Hi JD's mom, out of medications for the optic neuritis, which one do u think was most…"
yesterday
JD'sMom replied to JP's discussion ADEM and seizures. What's the right medication?
"Optic neuritis was treated primarily with high-dose solumedrol infusions for the worst attacks,…"
Thursday
JD'sMom replied to JP's discussion ADEM and seizures. What's the right medication?
"The first seizure was a grand mal, the culmination of several days of increasingly bad headaches…"
Thursday
JP replied to JP's discussion ADEM and seizures. What's the right medication?
"We are almost 6 months post ADEM diagnosis and my son has made great improvements!  He has…"
Thursday
JP replied to JP's discussion ADEM and seizures. What's the right medication?
"Do most people with seizures take 2 medications?  I worry about my son b/c when he titrated on…"
Thursday

Top Content 

1 in need of a ADEM specialist

in need of a ADEM specialist

Posted by mrsH on January 3, 2015

2 ADEM and seizures.  What's the right medication?

ADEM and seizures. What's the right medication?

Posted by JP on January 20, 2015

3 Does anyone who have same treatment process?

Does anyone who have same treatment process?

Posted by Yoongil on December 31, 2014

4 Does anyone who knows the step of improvement of ADEM

Does anyone who knows the step of improvement of ADEM

Posted by Yoongil on January 4, 2015

5 Baby Doll in the Nutcracker

Baby Doll in the Nutcracker

Added by Zoelyn's Mom on January 2, 2015

 
 
 

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