Welcome! You're not alone.

If your family has been affected by ADEM, consider Acute Disseminated Encephalomyelitis Support Network your second home.


1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.


Blog Posts

Never give up.

Posted by Armando Abrero on April 11, 2014 at 5:40pm 1 Comment

Just wanted to share this inspiring video.

Laugh often. Love a lot. Be strong. Never give up.…


Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter are not allowed in the Chat Room.   
5. Specific doctor or hospital names mentioned in a negative context, for legal reasons.    
Specific doctor or hospital names in a positive context are welcome.
6. No sharing of members' posts to other sites without their express permission.
Thanks for your cooperation.


All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.


There are no birthdays today

Community Moderators




  • Add Videos
  • View All

ClinicalTrials.gov Studies

Loading… Loading feed



What is Acute Disseminated Encephalomyelitis?

Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin – the protective covering of nerve fibers.  It often follows viral infection, or less often, vaccination for measles, mumps, or rubella. Acute disseminated encephalomyelitis also usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis

Ben's Friends Member Survey

Thank you for taking time to participate in our survey. We are so grateful that more than 1000 of you responded! We are now working on analyzing the data. We'll let you know of the survey results soon.

Mobile App and E-book are Available for Download

Keep in touch with friends. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

Ninibeth left a comment for Matt'sMom
"Welcome to the group!"
7 hours ago

Ken E. left a comment for Matt'sMom
"Matt's Mom - Welcome to our community.  My son was about 9 months older than your son…"
8 hours ago

dancermom left a comment for Matt'sMom
"Welcome, Matt'sMom, to this supportive community. I wish your son a full recovery. I'm…"
15 hours ago
Matt'sMom is now a member of Acute Disseminated Encephalomyelitis (ADEM)-Online Support Group
15 hours ago
Johnsmom replied to Emily's discussion Looking for anwers re medically induced coma due to ADEM in healthy 39 yr male
"Hi Emily, There were two times that they suggested putting the monitor in.  The day he was…"
16 hours ago
Emily replied to Emily's discussion Looking for anwers re medically induced coma due to ADEM in healthy 39 yr male
"Wow, I can't believe you went through all that without the monitor... maybe not knowing is…"
22 hours ago
SweetKnits replied to Hele's discussion Peripheral nervous system involvement in ADEM
"I did not have transverse myelitis, but my main ADEM lesion was in the medulla oblongata but did…"
sweetie pie commented on Nad's blog post ADEM - Flu Shot Related
"Yes. My husband has been officially diagnosed w/ ADEM due to the flu shot.  He too sleeps a…"

Top Content 

1 Looking for anwers re medically induced coma due to ADEM in healthy 39 yr male

Looking for anwers re medically induced coma due to ADEM in healthy 39 yr male

Posted by Emily on March 31, 2014

2 recurrent adem, being treated by rheumatology now

recurrent adem, being treated by rheumatology now

Posted by Dylansmom on April 4, 2014

3 Homeopathy or other natural remedies?

Homeopathy or other natural remedies?

Posted by LauraK on April 2, 2014

4 Never give up.

Never give up.

Added by Armando Abrero on April 11, 2014

5 vaccine caused ADEM

vaccine caused ADEM

Posted by tanya on March 19, 2014


Loading… Loading feed


Help Us Help Others

Help Ben's Friends

Like, Follow & Forward Us!

Follow Me on Pinterest

To Support AcuteDisseminatedEncephalomyelitis.org, Click an Ad. Or Two.

Are you in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.


  • Add Photos
  • View All




BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.

© 2014   Created by Bensfriends.org

Badges  |  Report an Issue  |  Terms of Service