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Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin, the protective covering of nerve fibers. Acute disseminated encephalomyelitis usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis.
My 36 yr old son was diagnosed with ADEM on Monday. His history didn't include any vaccinations or illnesses. He claims to have no headache. He presented very confused about the time. He thinks the year is ten years ago. He has none of the symptoms…Continue
Our daughter was diagnosed in October 2014 with ADEM. She was having s hard time staying awake, losing the ability to walk and move her left side at all. We received treatments of steroids and two weeks later we had relapsed, this time her optic…Continue
We are just Bickering seems like on a daily basis over tiny little things that don't mean anything, sometimes it will be over an imagined subject. And when I ask, can we please stop this bickering, and just have a nice weekend, or evening...then it…Continue
My 1 year old daughter was diagnosed with ADEM and also TM since it did not affect her brain too much. Demyelination of her spinal cord was from the cerebrospinal junction to T10. The onset of paralysis began 05/26/15 with IVIG and high dose steroid…Continue
We are now back home after 10 days away from home, the MRI was on JULY 6 at phoenix, the appoinment with the doctor was the next day JULY 7, thanks GOD my Alex is doing so great, the doctor was amazed because he is 99% great, like he was before…Continue
Hey gang,Sorry I've been off-line awhile. We moved to a new city-state, and are still trying to get settled in.Meanwhile, I'm having to find new doctors, and sadly this city also has no specialists in ADEM. I went to a neurologist who tried to tell…Continue
HiMy nephew is getting better since he was sick on Dec 2014. He had a one month in a induced coma and he had several times steroid, plasma exchange and IVIG. After then he was slowly getting better and now he can walk with help of walker and is on…Continue
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