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What is Acute Disseminated Encephalomyelitis?

Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin, the protective covering of nerve fibers. Acute disseminated encephalomyelitis usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis.



Started by Blossom in General 18 hours ago. 0 Replies

HelloMy user name is Blossom.  I love blossoms especially those that bloom in the Springtime.  I see them every year and feel there is hope.  I had a severe attack of ADEM in 2000.  17 hospitals , 4 rehab facilities in 4 different cities, I am still…Continue

My adult son diagnosed

Started by JR in General. Last reply by Sandra F Sep 24. 24 Replies

My 36 yr old son was diagnosed with ADEM on Monday. His history didn't include any vaccinations or illnesses. He claims to have no headache. He presented very confused about the time. He thinks the year is ten years ago. He has none of the symptoms…Continue

Medicine question

Started by Lianne in General. Last reply by Mary16 Sep 22. 4 Replies

Do you have experience or information on the medicine Amantadine (also known as Symmetrel)? My rehabilitation doctor advised me this in my issues on sensitivity (noise, visual) and fatigue. He described it as an 'arousal' tempering/softening…Continue

Hot Weather/Sun an issue?

Started by gpg313 in General. Last reply by Lynn Sep 19. 2 Replies

Does anyone else have an issue with hot weather or sunshine?  I find I fatigue rather easily if the weather is hot or I am in direct sunshine too long.Continue

Tags: fatigue, sunshine, weather, Hot, Heat

Has anyone suffered serious side effects after ADEM onset?

Started by Louiedog in General. Last reply by Louiedog Sep 17. 5 Replies

I was diagnosed with ADEM in Jan 2015 and since have been impressing my consultant neurologist with the above average speed of my recovery. I was put onto a 4 monthly visit to him for check ups as he didn't see it necessary to see me on a more…Continue

Tags: surgery, side, effect, necrosis, avascular

Pop Ups

Started by Modsupport in General Sep 15. 0 Replies

TJ Here. We have been working with (or ignored by) the folks at Ning about the pop-ups that occur here occasionally. There is no explanation why only this site is getting them.  Bens Friends has cancelled all Google Advertising leaving donations and…Continue

Rare Neuro-Immune Disorders Symposium - Oct 2015

Started by LauraK in General Sep 10. 0 Replies

For those interested, here is the link to the conference info. My husband and I will be going, and I'll happily take any questions or insights you have to share.http://myelitis.org/2015-rnds/"Welcome to…Continue

c-r-a-z-y MOM

Started by Sandra F in General. Last reply by Sandra F Sep 9. 2 Replies

Hi everyone, today im feeling a little bit anxious, my boy is back to school now and our life seems to be prety normal THANKS GOD, well today is one of those days that i get nervous, i was driving back from school and my son told me he was having a…Continue

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Latest Activity

Blossom left a comment for FCMMARK
"Hi Mark thank you for the warm welcome.  I am a bit intimidated by the format of the…"
18 hours ago
Blossom posted a discussion


HelloMy user name is Blossom.  I love blossoms especially those that bloom in the Springtime.  I…See More
18 hours ago
Sandra F replied to JR's discussion My adult son diagnosed
"JR im happy that your son is responding to the treatment, big hug from Mexico!"
Sep 24
Czarina replied to JR's discussion My adult son diagnosed
"My daughter, now 50, had  a severe ADEM experience 7 years ago.  Recovery is…"
Sep 24
Occipital replied to JR's discussion My adult son diagnosed
"JR thanks for sharing the news. You and your son are in our thoughts and prayers. "
Sep 23

Lynn replied to JR's discussion My adult son diagnosed
"Will keep praying...Hang in there!  Keep celebrating each and every little improvement!!!"
Sep 23
JR replied to JR's discussion My adult son diagnosed
"I have another update. My son remains in ICU but is improving. He has had no fever for 24 hours.…"
Sep 22
Lotus posted a status
"Sleeping and lots of it. Within the last 10 days, sleep, wake up, sleep some more..hours and hours at a time. Increasing more and more ...."
Sep 22

Top Content 

1 Has anyone suffered serious side effects after ADEM onset?

Has anyone suffered serious side effects after ADEM onset?

Posted by Louiedog on September 6, 2015

2 Medicine question

Medicine question

Posted by Lianne on September 5, 2015

3 Hot Weather/Sun an issue?

Hot Weather/Sun an issue?

Posted by gpg313 on September 14, 2015

4 My adult son diagnosed

My adult son diagnosed

Posted by JR on August 26, 2015

5 c-r-a-z-y MOM

c-r-a-z-y MOM

Posted by Sandra F on September 7, 2015

6 Introduction


Posted by Blossom on October 3, 2015

7 Rare Neuro-Immune Disorders Symposium - Oct 2015

Rare Neuro-Immune Disorders Symposium - Oct 2015

Posted by LauraK on September 10, 2015

8 Pop Ups

Pop Ups

Posted by Modsupport on September 15, 2015


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