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Ben's Friends Monthly Newsletter - July 2014 Issue

Posted by Ben Munoz on July 31, 2014 at 10:30am 0 Comments

Just the Stats:



Welcome New Members and Greetings from Ben's Friends!…


Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
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5. No specific doctor or hospital names mentioned in a negative context, for legal reasons.    
Specific doctor or hospital names in a positive context are welcome.
6. No sharing of members' posts to other sites without their express permission.
7. There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted.
Thanks for your cooperation.


All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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What is Acute Disseminated Encephalomyelitis?

Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin – the protective covering of nerve fibers.  It often follows viral infection, or less often, vaccination for measles, mumps, or rubella. Acute disseminated encephalomyelitis also usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis


Recurrent ADEM?

Started by sweetie pie in General. Last reply by sweetie pie yesterday. 2 Replies


Started by Danny in General. Last reply by sweetie pie on Saturday. 5 Replies


Started by Danny in General. Last reply by sweetie pie on Friday. 4 Replies

Headaches post ADEM

Started by Nicola in General. Last reply by Flu shot ADEM Aug 14. 3 Replies

Mobile App and E-book are Available for Download

Keep in touch with friends. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

Scott Orn posted a discussion
11 hours ago

dancermom liked Matt'sMom's photo
22 hours ago
Matt'sMom's photo was featured

Matt 6 months post ADEM

Walking assisted with an AFO
22 hours ago
Matt'sMom posted photos
sweetie pie replied to sweetie pie's discussion Recurrent ADEM?
"Thank you. Just knowing that some of you have recurrent issues, sets things a little straighter in…"
Ender replied to sweetie pie's discussion Recurrent ADEM?
"Hello, Sweetiepie. I had recurrent ADEM - two events, one in 2009 and the last one one year ago, in…"
Scott Orn left a comment for JP
"Hi JP -  Huge welcome to the community! This is a great place! One tip, if you have specific…"
sweetie pie replied to Danny's discussion IVIG
"George. I understand the uniqueness of each person, but it is frustrating when a neurologist looks…"

Top Content 

1 Happy Anniversary!!

Happy Anniversary!!

Posted by Ken E. on July 23, 2014

2 Help


Posted by Danny on August 12, 2014



Posted by Danny on August 13, 2014

4 Bad Days

Bad Days

Posted by Flu shot ADEM on August 6, 2014

5 Zoelyn


Added by Zoelyn's Mom on July 23, 2014


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Are you in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.


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