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If your family has been affected by ADEM, consider Acute Disseminated Encephalomyelitis Support Network your second home.


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Blog Posts

What can we expect?

Posted by DAD on February 8, 2015 at 6:08pm 4 Comments

My daughter was diagnosed within 2 days of showing symptoms. At first they thought it was viral meningitis. When they did the MRI thats when they saw the lesions in the brain. I would like to know if she knows who we are. She is aware now but not…


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What is Acute Disseminated Encephalomyelitis?

Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin – the protective covering of nerve fibers.  It often follows viral infection, or less often, vaccination for measles, mumps, or rubella. Acute disseminated encephalomyelitis also usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis


What's next?

Started by Mama Bear in General. Last reply by Ken E. yesterday. 6 Replies

Aria Update

Started by DAD in General. Last reply by Mama Bear on Monday. 4 Replies

I'm so thankful to have found this page

Started by lilahfish in General. Last reply by Mama Bear on Monday. 8 Replies

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Latest Activity

papageo replied to Lily's Mom's discussion My first Discussion and I Think You've Helped Me Already :)
"Hi there. Let me tell you the sequence of events from an adult's prospective. Had my first…"
42 minutes ago

Ken E. replied to Lily's Mom's discussion My first Discussion and I Think You've Helped Me Already :)
"Hi Lily's Mom.  The dreaded relapse, something I know we all worry about.  3 years…"
7 hours ago

Lynn left a comment for Brittani Carlin
"Brittani, I'm Lynn and I too have ADEM.  I was diagnosed in May 2013, I only had the one…"
9 hours ago

Lynn left a comment for Malinda Britton
"Malinda, my name is Lynn.  I was diagnosed in May 2013, but your daughter has symptoms…"
10 hours ago

Lynn left a comment for Frank
"Frank, my name is Lynn and I was diagnosed in May 2013.  Your symptoms sound very similar to…"
10 hours ago
Lily's Mom posted a discussion

My first Discussion and I Think You've Helped Me Already :)

So, where to begin. Our six year old daughter, Lily, was paralyzed for about a day last May. Lily's…See More
10 hours ago

Ken E. left a comment for Brittani Carlin
"Hi Brittani - Welcome to our community.  I'm glad you found us :)  I'm sorry to…"
13 hours ago

Ken E. left a comment for Lily's Mom
"Hi Lily's Mom - Welcome to our community!!  Can you tell us more about the concerns you…"
13 hours ago

Top Content 

1 I'm so thankful to have found this page

I'm so thankful to have found this page

Posted by lilahfish on February 17, 2015

2 Aria Update

Aria Update

Posted by DAD on February 24, 2015

3 Headache and fatigue

Headache and fatigue

Posted by Worriedmom on February 17, 2015

4 Legs


Posted by KK on February 13, 2015

5 What can we expect?

What can we expect?

Added by DAD on February 8, 2015


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