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If your family has been affected by ADEM, consider Acute Disseminated Encephalomyelitis Support Network your second home.


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Blog Posts

Local Fundraiser for Ben's Friends

Posted by Scott Orn on March 22, 2015 at 2:30am 0 Comments

I wanted to share some good news from a local fundraiser we did last night in San Francisco. Some friends of mine wanted to support Ben's Friends so they held a "bar night get together for Ben's Friends."

It was a big success as we…


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What is Acute Disseminated Encephalomyelitis?

Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin – the protective covering of nerve fibers.  It often follows viral infection, or less often, vaccination for measles, mumps, or rubella. Acute disseminated encephalomyelitis also usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis

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Be inspired by the amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

Queenie replied to Worriedmom's discussion Foot giving out
"I second chiropractor although not for manipulations but for kinesiology. My girl had 4 or 5…"

Lynn replied to Worriedmom's discussion Foot giving out
"Have you ever tried Chiropractic?  His head pain may benefit from cervical treatment.  As…"
Lily's Mom posted a discussion

Anyone else considering diet and lifestyle changes?

I want to share some books I've read and would recommend.Dr. Sarah Ballantyne's book The Paleo…See More
Lily's Mom replied to Worriedmom's discussion Foot giving out
"Are you able to see a physical therapist? Talk to them about the foot drop. The head pressure does…"
Lily's Mom commented on pam's blog post toilet habits
"For the first few months our daughter, 6yo, had the same frequent urge. We encouraged her to…"
Worriedmom posted a discussion

Foot giving out

Good morning everyone!My 7 year old son was diagnosed with ADEM in Oct 2013. He is doing very well,…See More
Mama Bear replied to Mama Bear's discussion does anyone else have eye rolls?
"Thanks for the responses! So- Wesley was put on Steroids- Prednisolone for 5 days to help with what…"
Mime replied to Mama Bear's discussion does anyone else have eye rolls?
"Hi mama, I'm not a native English speaker so please excuse me if I don't…"

Top Content 

1 Vaccinations after ADEM

Vaccinations after ADEM

Posted by Queenie on March 18, 2015

2 When is it appropriate to wait, and when should we take action?

When is it appropriate to wait, and when should we take action?

Posted by Angie's Sister on March 15, 2015

3 toilet habits

toilet habits

Added by pam on March 19, 2015

4 My first Discussion and I Think You've Helped Me Already :)

My first Discussion and I Think You've Helped Me Already :)

Posted by Lily's Mom on March 4, 2015

5 does anyone else have eye rolls?

does anyone else have eye rolls?

Posted by Mama Bear on March 18, 2015


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