AcuteDisseminatedEncephalomyelitis.org

Acute Disseminated Encephalomyelitis (ADEM) Support

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Facebook Feature Supports Organ Donation

Posted by Armando Abrero on May 27, 2012 at 7:00pm 0 Comments 0 Likes

We never realize the value of organ donation, until we're on the receiving end.…

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May 2012 Community Newsletter

Posted by Ben Munoz on May 26, 2012 at 10:00am 0 Comments 0 Likes

Dear Friends and Family of ADEM,

We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient communities…

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ClinicalTrials.gov Studies

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Specific doctor or hospital names in a positive context are welcome.

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Moderator Ben Munoz created this Ning Network.

Please click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!

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Free Medical Opinion Through a Partnership with 2nd.md

Started by Ben Munoz in General on Friday. 0 Replies 0 Likes

Do you know anyone in need of a second opinion?Our new partner, 2nd.md provides second opinions from doctors who are specialists, over the internet. They are just getting started and have approached us to help test out their systems. In the future,…Continue

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How You Can Help Spread the Word About AcuteDisseminatedEncephalomyelitis.org

Started by Ben Munoz in General May 18. 0 Replies 0 Likes

Members and friends,We're glad that all of you have managed to find our community, part of the Ben's Friends network of patient communities. Without a doubt, we will one day be as large and active as our largest communities, …Continue

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Twitter Chat

Started by John "JC" Colyer in General. Last reply by John "JC" Colyer May 18. 2 Replies 0 Likes

Hope everybody is well.Would any of you be interesting in being a part of a twitter chat? It could be a fun way to learn about other communities on BF, share your experiences with a rare disease, tell your story and gain exposure for BF and all of…Continue

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What would you do to comfort a sick friend?

Started by Armando Abrero in General May 9. 0 Replies 0 Likes

"What would you do to comfort a sick friend?"Aside from the usual bouquet of flowers and basket of fruits, I'd like to hear your suggestions, especially from patients, as you would know from your end what cheers up a sick person.I'll be compiling…Continue

What is ADEM?

Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin – the protective covering of nerve fibers. It often follows viral infection, or less often, vaccination for measles, mumps, or rubella. Treatment for ADEM is targeted at suppressing inflammation in the brain using anti-inflammatory drugs.