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Blog Posts
ADEM Lawyers
Posted by bchap on May 20, 2013 at 12:58am 1 Comment 0 Likes
I got a very bad ADEM from the arthrituis medication Enbrel. It has changed my life in a very negative way. I would like to sue the manufacters of Enbril. Does anybody on this site know a good ADEM lawyer?
Barry
Preparing For An Appointment With A New Doctor
Posted by Ben Munoz on April 27, 2013 at 5:33am 0 Comments 1 Like
Finding a new doctor can be difficult, and very scary. Being prepared can make the whole experience much easier on you, and on the new doctor. Remember that the doctor works for YOU, and if you are…
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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
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What is ADEM?
Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin – the protective covering of nerve fibers. It often follows viral infection, or less often, vaccination for measles, mumps, or rubella.
Forum
What do you like to do to occupy your time with?
Started by Ben Munoz in General. Last reply by mary on Tuesday. 1 Reply 1 Like
For those of you who aren't able to work any more. What do you like to do to fill your time? If you do crafts, what kind of a craft do you do?I'm hoping all of us can share our ideas to help others (including myself) come up with new things that we…Continue
What type of music comforts you?
Started by Armando Abrero in General. Last reply by mary on Tuesday. 1 Reply 1 Like
Of course, there is no right or wrong answer. What type, brand, era, genre of music do you listen to when you're looking for comfort?Continue
ADEM charity?
Started by Momred4 in General. Last reply by Scott Orn May 16. 4 Replies 2 Likes
Does anyone know if there is any charity or organization that helps fund research for ADEM? My Dr told me to concentrate my efforts towards MS, since they are closely related. But, until my son's death, he'd never even heard of ADEM.Thank you!Continue
Page Layout
Started by Michaela Oteri in General May 14. 0 Replies 2 Likes
Hello everyone. I am here for Ben's Friends, helping out with some of the pages designs. Someone suggested that this page's colors could be a little easier on the eyes so here I am. I wont be making any changes until members have gotten a chance to…Continue
Latest Activity
mary replied to Ben Munoz's discussion What do you like to do to occupy your time with?"I have work and studies but sometimes when I don't feel like doing the two, I play with my…"
Top Content
| 1 |
Highly Recommended Doctors and Hospitals for ADEM PatientsPosted by Ben Munoz on March 6, 2013 |
| 2 |
Repeat MRI?Posted by houstondoc on April 24, 2013 |
| 3 |
ADEM charity?Posted by Momred4 on February 8, 2013 |
| 4 |
What type of music comforts you?Posted by Armando Abrero on May 19, 2013 |
| 5 |
What do you like to do to occupy your time with?Posted by Ben Munoz on May 16, 2013 |
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"I know it’s a bit hard to try deal with something unknown and the best source of support must..."
“I know it’s a bit hard to try deal with something unknown and the best source of support must be the people who are dealing/have dealt with it.”- a member from Acute Disseminated Encephalomyelitis (ADEM)-Online Support Group
"Thank you so much!"
“Thank you so much!”- a member from Acute Disseminated Encephalomyelitis (ADEM)-Online Support Group
"As a mother of a child with ADEM, I felt really alone at first. It is good to know there are others..."
“As a mother of a child with ADEM, I felt really alone at first. It is good to know there are others out there and we can help each other.”- a member from Acute Disseminated Encephalomyelitis (ADEM)-Online Support Group
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For millions of people suffering from kidney diseases, NephroticSyndromeSupport.org is invaluable, as patient-to-patient interaction allows for an exchange of support and information. Click on this link to see how we launched our Nephrotic Syndrome Support site on CNN.com. http://ireport.cnn.com/docs/DOC-937040Bensfriends.org Posts Milestones on Rare Disease Day 2013
Bensfriends.org champions people who suffer from rare diseases by raising awareness, fostering connection and empowering them. In 2012, the global social enterprise surpassed performance milestones despite meager resources, making it a major online social media advocate for orphan diseases. Read more from CNN iReport as Ben’s Friends Resident Writer, Armando Abrero shares report!Best Of Ben’s Friends – February 2013
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