Welcome! You're not alone.

Getting Started:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Join or Create a Group

Check the Help tab above.


To maintain your privacy in a google-y universe, please do not use your real-life name.
Because we are a peer-to-peer support network, we ask that members not include honorifics, degrees or professional designations such as RN, Imam, PhD. Adv, MSW, Sr, Dr., Dame, Sgt, Rev, DO or similar in their screen name. We will not approve these after Sept 2015.

To change your screen name, click here. 


All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment.

Always seek the advice of your physician or qualified health provider with any questions regarding your health.

Do not disregard professional medical advice or delay seeking it because of something you read on this site.

Our Guidelines

Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
  2. No spam.
  3. No personal attacks or defamatory posts.
  4. No offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos).
  5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
  6. No sharing of members' posts to other sites without their express permission.
  7. No solicitations or promotions of goods or services for sale. No fundraising without the permission of the moderators.
  8. No email addresses or phone numbers on the forum, for your security.
  9. Religious content must be restricted to the prayer group.
  10. No politics please, please.
  11. This is a peer to peer group so please no professional "titles"

Thanks for your cooperation.

Community Moderators

Have a question, concern, or suggestion? Or would you like to volunteer?

Please send a private message to a moderator.





What is Acute Disseminated Encephalomyelitis?

Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin, the protective covering of nerve fibers. Acute disseminated encephalomyelitis usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis.


The Podcast

Started by LauraK in General. Last reply by Sarah 12 hours ago. 4 Replies

The Transverse Myelitis podcast about ADEM just finished, and I think it was pretty good. They dealt with both adult and pediatric issues, and the experts gave great information.The podcast will soon be available on the TMA website (but not yet - I…Continue

Your Ben's Friends community is on the move!

Started by Modsupport in General yesterday. 0 Replies

Ben’s Friends is getting a great new look!Very soon you'll log onto ADEM and find that your community looks and works differently than it did before.Your old friends and…Continue

My Story

Started by miffer in General yesterday. 0 Replies

Hi I' new to the group. Here is my story. My ADEM story began 23 years ago. but I will attempt to give a brief account. In August 1993 I was a fully fit able bodied woman who following a severe headache was left paralysed from the neck down with no…Continue

Online podcast about ADEM

Started by LauraK in General. Last reply by LauraK on Thursday. 12 Replies

I belong to the Transverse Myelitis Association, and they are having a podcast about ADEM. I will be participating, and I encourage you to do so as well. We need to get the word out that adults also get ADEM, and I have a feeling this will primarily…Continue

Mobile App

Keep in touch with friends. DOWNLOAD the Ben's Friends iPhone App now.

Latest Activity

Sarah replied to LauraK's discussion The Podcast
"Just listened to the podcast on…"
12 hours ago

Modsupport posted a discussion

Your Ben's Friends community is on the move!

Ben’s Friends is getting a great new look!Very soon you'll log onto …See More
miffer posted a discussion

My Story

Hi I' new to the group. Here is my story. My ADEM story began 23 years ago. but I will attempt to…See More
miffer updated their profile

Top Content 

1 Online podcast about ADEM

Online podcast about ADEM

Posted by LauraK on May 11, 2016

2 The Podcast

The Podcast

Posted by LauraK on May 19, 2016

3 "New Normal" and New beginnings

"New Normal" and New beginnings

Posted by LauraK on May 15, 2016

4 Update on Robert

Update on Robert

Posted by Kris on May 2, 2016


© 2016   Created by Bensfriends.org   Powered by

Badges  |  Report an Issue  |  Terms of Service