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What is Acute Disseminated Encephalomyelitis?

Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin, the protective covering of nerve fibers. Acute disseminated encephalomyelitis usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis.


What Is Your Escape Fantasy?

Started by Occipital in General. Last reply by Lotus 5 minutes ago. 4 Replies

What thoughts make you feel better? What do you think about when you want to runaway? One option is meditation. For me another favorite is researching camping.There are so many great options. In the USA there are wonderful places to campeverywhere.…Continue


Started by Vicky in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Lotus 13 minutes ago. 9 Replies

I have had such a bad few days after a very positive last week. Why has the last few days I have felt soo low. Feel like I'm going backwards :(

Seizure medication

Started by JP in General. Last reply by Sandra F 9 hours ago. 1 Reply

For younger kids (3-5 yrs. old) affected from ADEM...  What seizure medication has worked for your child?  I know everyone is different, but I just want to hear how children have responded to Topomax and Zonegran specifically.  ThanksContinue

Behavioral issues

Started by JP in General 9 hours ago. 0 Replies

My son pinches, bites and pulls hair as a result of ADEM.  He cannot talk and cannot see.  Any suggestions for these issues.Continue

Hyperbaric O2 Chamber and Acupuncture for ADEM / TM

Started by MissDP in Complementary Therapies. Last reply by JP 9 hours ago. 2 Replies

My 1 year old daughter was diagnosed with ADEM and also TM since it did not affect her brain too much. Demyelination of her spinal cord was from the cerebrospinal junction to T10. The onset of paralysis began 05/26/15 with IVIG and high dose steroid…Continue

Meditation Is The Only Thing That Makes Me Feel Like "Me" Again

Started by Occipital in General 19 hours ago. 0 Replies

There are basic for maintaining your body. Fear, food, sex, and sleep are big ones.They all help with recovery. What is the next big one that helps for you? Forme it is meditation. I've tried everything. Meditation is the only thing thatmakes me…Continue

Is there RECOVERY?

Started by Lotus in Emotional Support. Last reply by Lynn 19 hours ago. 28 Replies

I suppose the question we just don't seem to have any kind of answer to is,,,,Is there recovery once you have the lesions in your brain and All the Dr. will say is "it takes a long time for  the brain to Heal". Does this mean that the damage that is…Continue

Tags: asking, and, talkin, Just

Sweet quote about the "new normal"

Started by Occipital in General. Last reply by Occipital 19 hours ago. 3 Replies

Yesterday I had tea with a survivor. He shared with me something that I find succinct and uplifting:The new normal may be a moving target, and that is OK; just keep it moving forward!Keep at it.Continue

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Latest Activity

Lotus replied to Occipital's discussion What Is Your Escape Fantasy?
"I think a few days of camping on the river, laying on a tube, kickin back floating in the water,…"
5 minutes ago
Lotus replied to Vicky's discussion Feeling...
"Yesterday was a bad day for my sweetheart. He felt totally dull. No appetite, no ambition to do a…"
13 minutes ago
Lotus replied to Occipital's discussion What Is Your Escape Fantasy?
"I certainly daydream about running away,, escaping, just being somewhere else but where I am if…"
18 minutes ago
Sandra F replied to JP's discussion Seizure medication
"My 7 year son was on Keppra just to prevent a seizure, he didnt have any, in ADEM Every case is…"
9 hours ago
JP posted discussions
9 hours ago
JP replied to MissDP's discussion Hyperbaric O2 Chamber and Acupuncture for ADEM / TM
"Does your doctors feel it's the HBOT or her body healing on its own?  We've thought…"
9 hours ago
juliana liked Occipital's discussion Meditation Is The Only Thing That Makes Me Feel Like "Me" Again
10 hours ago

Lynn replied to Occipital's discussion What Is Your Escape Fantasy?
"Sometimes I'd LOVE to run away...my problem is that I'm too responsible to run away.…"
18 hours ago

Top Content 

1 Is there RECOVERY?

Is there RECOVERY?

Posted by Lotus on June 22, 2015

2 ADEM long term effects ?

ADEM long term effects ?

Posted by Elaine - Haley'sMom on June 12, 2015

3 Newly Diagnosed, Looking for Doctor

Newly Diagnosed, Looking for Doctor

Posted by oklahomagirl on June 13, 2015

4 My Daughter's ADEM Story

My Daughter's ADEM Story

Posted by Concerned Mom on February 13, 2015

5 Anyone seeing Pop-ups?

Anyone seeing Pop-ups?

Posted by Madere (dancermom) on June 27, 2015

6 Anxious mom

Anxious mom

Posted by Sandra F on June 23, 2015

7 Any luck finding an ADEM doctor?

Any luck finding an ADEM doctor?

Posted by LauraK on June 9, 2015

8 Headaches


Posted by Sandra F on June 15, 2015


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