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Blog Posts

Please help regarding seizure med.

Posted by JP on April 14, 2015 at 3:37am 1 Comment

Hi, please give me advice and/or opinions on seizure meds?  My son is 3, almost 4.  He was diagnosed w/ ADEM in Aug. 2014 and didn't start having seizures till 3 months post diagnosis.  He's improved greatly since he was released from the…


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What is Acute Disseminated Encephalomyelitis?

Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin – the protective covering of nerve fibers.  It often follows viral infection, or less often, vaccination for measles, mumps, or rubella. Acute disseminated encephalomyelitis also usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis


Recovery how long in adults

Started by Ness in General. Last reply by bchap 9 hours ago. 18 Replies


Started by vix in General. Last reply by KK 12 hours ago. 2 Replies

Connection to Lyme

Started by David in General. Last reply by Lynn yesterday. 7 Replies

Recent relapse

Started by Steveo in General. Last reply by Aggie97 yesterday. 2 Replies

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Latest Activity

dancermom left a comment for sisto
"Welcome, sisto, to this supportive community. Feel free to open a discussion to introduce yourself…"
8 seconds ago

dancermom left a comment for Nejah
"Welcome, Nejah, to this supportive community. Feel free to open a discussion to introduce yourself…"
30 seconds ago
Profile Iconsisto, Nejah and Ricky joined Acute Disseminated Encephalomyelitis (ADEM)-Online Support Group
1 minute ago

Lynn left a comment for Ricky
"What did the doctor have to say?  Sorry I missed the doctor."
8 hours ago

Lynn left a comment for Ricky
"Hi Ricky, my name is Lynn and I was diagnosed May 2013.  Did you see a doctor at all after you…"
8 hours ago
bchap replied to Ness's discussion Recovery how long in adults
" Jeanette,  My brain now has lesions after the ADEM. MS is the fall back postion that…"
9 hours ago
RapNJet82 replied to Ness's discussion Recovery how long in adults
"Hi, I was also diagnosed with ADEM in 2012 after taking the flu shot.  I have been…"
10 hours ago
SweetKnits replied to Lily's Mom's discussion Anyone else considering diet and lifestyle changes?
"Read "The China Study" as well.  There is conflicting data as to the best diet for…"
12 hours ago

Top Content 

1 Recovery how long in adults

Recovery how long in adults

Posted by Ness on April 17, 2015

2 Has anyone "tried" going back to work part time ADEM ?

Has anyone "tried" going back to work part time ADEM ?

Posted by CLoza256 on April 8, 2015

3 Comatose and diagnosed with ADEM

Comatose and diagnosed with ADEM

Posted by Zhylo on April 13, 2015

4 Relapses?


Posted by LauraK on April 17, 2015

5 Bad days or relapsing?

Bad days or relapsing?

Posted by Rob on April 8, 2015


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